Words cannot even begin to express the gratitude we feel from all of the love, prayers, well wishes, and support we have received since going “live” with our site. In less than 24 hours, Izzy has already been celebrated in so many ways and we look forward to continuing this journey with all of you.
Sterling and I initially thought to keep Izzy’s condition to ourselves and our family, for the fear of life treating her different. But then we realized that wasn’t fair – not to her, not to us, not to the special needs or medically handicap world. And as we’re already seeing, sharing her story is doing exactly what we intended – helping & raising awareness.
Family, friends – old & new, colleagues – past & present, college dormmates, high school & college classmates, everyone who has reached out – thank you. The fact that I’ve already been able to connect with others on relatable issues just confirms that what we’re doing is important & truly means something.
Izzy’s story is far from over. Her genetic disorder is lifelong and there is no cure. What the next day or the next year brings will always be unknown. But we’re working with some of the best doctors and specialists our girl could have, & today, how could she not be thriving from all of the outreach?!
On September 7th, driving to one of Izzy’s appointments, a conversation became an idea. And now here we are. With all of you. Sharing, learning, growing, overwhelmed with positive feedback.
Stay tuned… there’s so much more to come!