From the start, feedings with Izzy have been challenging. However, in more recent times, they have also been rewarding seeing her progress. We know with her diagnosis that she will…
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Wednesday, 7/28 Met with speech today and that went well. Just finished another bottle so currently trying to hold that down. And finally someone actually spoke to a cardiologist. Not…
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Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
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Wednesday, 7/21 Sometimes I wonder why I share anything positive because it seems like those glimmers of hope just get ripped away from us so quickly… like we can start…
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Tuesday, 7/20 After morning rounds, we waited for Izzy’s swallow study around 1 pm. She passed it with flying colors. This test was done in x-ray with me feeding her…