While Izzy was hospitalized, all medicine was given to her through her NG & NJ tubes, her IV, and her PICC line. Once the talk started about discharge, we had…
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From the start, feedings with Izzy have been challenging. However, in more recent times, they have also been rewarding seeing her progress. We know with her diagnosis that she will…
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The 5 Stages of Grief No matter what a person is mourning, they typically cycle through the 5 stages of grief. For me, I have an internal struggle with saying…
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November 1st, 2021 We’ve got a thumb sucker on our hands, ladies & gentlemen! Baby girl is obsessed with her perfect little chubby fingers 🥰 Another obsession – bright lights…
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Tuesday, 7/27 Today, Izzy will have an ultrasound of her kidneys to make sure they are anatomically correct since kidney problems are a possible symptom with DiGeorge/22q. We’re also checking…
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Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
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Sunday, 7/25 Results came back good on the CT scan – no sling thank God. Finally someone gave us some clarification on Izzy’s heart “abnormalities”. Apparently hers is built differently…
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Saturday, 7/24 Last night was really hard. After getting the positive DiGeorge results, I couldn’t relax my mind. “no cure” … Stop googling. “likely to be diagnosed with Autism” ……
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Friday, 7/23 Reflux is a bitch. I can tell it’s really bothering Izzy. She’s fussy and making gasping and choking noises which are pretty alarming. She’s trying to figure out…
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Wednesday, 7/21 Sometimes I wonder why I share anything positive because it seems like those glimmers of hope just get ripped away from us so quickly… like we can start…