Throughout Izzy’s outpatient appointments, a few of her specialists would always ask, “Are you working with Help Me Grow?” We would respond no, but that we would look into it……
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Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
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Sunday, 7/25 Results came back good on the CT scan – no sling thank God. Finally someone gave us some clarification on Izzy’s heart “abnormalities”. Apparently hers is built differently…
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Saturday, 7/24 Last night was really hard. After getting the positive DiGeorge results, I couldn’t relax my mind. “no cure” … Stop googling. “likely to be diagnosed with Autism” ……
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Friday, 7/23 Reflux is a bitch. I can tell it’s really bothering Izzy. She’s fussy and making gasping and choking noises which are pretty alarming. She’s trying to figure out…
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18 days is a long time away from your kids. I mean, one or two days… now we’re talking (ha), but not 18. And not under these circumstances. Sterling was…
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Wednesday, 7/21 Sometimes I wonder why I share anything positive because it seems like those glimmers of hope just get ripped away from us so quickly… like we can start…
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Sunday, 7/18 When Izzy got her initial nasal tube placed, I asked if there was any way she could pull it out. They said no. So, Izzy pulled out her…
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It was Saturday, July 17th, at 1:45 in the morning. We’re on the neurology floor of Akron Children’s Hospital. Izzy is laying down in her crib asleep. Sterling and I…
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Saturday, 7/17 At 1:45 in the morning, Izzy aspirated. This was the worst day of my life. We’re on the neuro floor. Izzy gets laid down in her crib to…