From the start, feedings with Izzy have been challenging. However, in more recent times, they have also been rewarding seeing her progress. We know with her diagnosis that she will…
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Friday, 7/23 Reflux is a bitch. I can tell it’s really bothering Izzy. She’s fussy and making gasping and choking noises which are pretty alarming. She’s trying to figure out…
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Wednesday, 7/21 Sometimes I wonder why I share anything positive because it seems like those glimmers of hope just get ripped away from us so quickly… like we can start…
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Tuesday, 7/20 After morning rounds, we waited for Izzy’s swallow study around 1 pm. She passed it with flying colors. This test was done in x-ray with me feeding her…
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Wednesday, 7/14 The frustration begins. At 1:40 in the morning, I texted my mom, “The medicine isn’t working. She’s still seizing, and no one seems to know what the fuck…