$196,713.96 That was the total of our bill for Izzy’s inpatient stay in July (though it wasn’t mailed to us until January). That does not include any of her ongoing…
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During our inpatient stay, we learned just how important it is to have good healthcare workers. While Izzy was hospitalized at Akron Children’s, we worked with countless individuals – doctors,…
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Friday, 7/30 18 days in & we’re FINALLY going home!!! They said “if” she is ready, then today’s the day. I said, she IS ready. No if’s. Sterling and I…
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Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
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Wednesday, 7/21 Sometimes I wonder why I share anything positive because it seems like those glimmers of hope just get ripped away from us so quickly… like we can start…
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It was Saturday, July 17th, at 1:45 in the morning. We’re on the neurology floor of Akron Children’s Hospital. Izzy is laying down in her crib asleep. Sterling and I…
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Saturday, 7/17 At 1:45 in the morning, Izzy aspirated. This was the worst day of my life. We’re on the neuro floor. Izzy gets laid down in her crib to…
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Friday, 7/16 Sterling is over it. He wants to transfer to Cleveland Clinic if this hospital does not hear us out today. Because they messed up the second spinal yesterday…
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Thursday, 7/15 Got to hold Izzy one time throughout the night & rock her back to sleep. Had to stand to do this though because I couldn’t move her away…
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Wednesday, 7/14 The frustration begins. At 1:40 in the morning, I texted my mom, “The medicine isn’t working. She’s still seizing, and no one seems to know what the fuck…