While Izzy was hospitalized, all medicine was given to her through her NG & NJ tubes, her IV, and her PICC line. Once the talk started about discharge, we had…
-
Wednesday, 7/28 Met with speech today and that went well. Just finished another bottle so currently trying to hold that down. And finally someone actually spoke to a cardiologist. Not…
-
Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
-
Sunday, 7/18 When Izzy got her initial nasal tube placed, I asked if there was any way she could pull it out. They said no. So, Izzy pulled out her…
-
Saturday, 7/17 At 1:45 in the morning, Izzy aspirated. This was the worst day of my life. We’re on the neuro floor. Izzy gets laid down in her crib to…
-
Friday, 7/16 Sterling is over it. He wants to transfer to Cleveland Clinic if this hospital does not hear us out today. Because they messed up the second spinal yesterday…
-
Thursday, 7/15 Got to hold Izzy one time throughout the night & rock her back to sleep. Had to stand to do this though because I couldn’t move her away…
-
Wednesday, 7/14 The frustration begins. At 1:40 in the morning, I texted my mom, “The medicine isn’t working. She’s still seizing, and no one seems to know what the fuck…