Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
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Monday, 7/19 EEG is on. Neurologist came by and told us all good from his end – keep on the Phenobarb because it’s working and she’s not seizing! EEG is…
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Sunday, 7/18 When Izzy got her initial nasal tube placed, I asked if there was any way she could pull it out. They said no. So, Izzy pulled out her…
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Friday, 7/16 Sterling is over it. He wants to transfer to Cleveland Clinic if this hospital does not hear us out today. Because they messed up the second spinal yesterday…
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Wednesday, 7/14 The frustration begins. At 1:40 in the morning, I texted my mom, “The medicine isn’t working. She’s still seizing, and no one seems to know what the fuck…
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Tuesday, 7/13 Our pediatrician referred us to Akron Children’s neurology floor due to Izzy’s seizures. We arrived to the hospital & went directly to admitting. We had packed a few…