my22qt

With the 22q11.2 diagnosis, there is life expectancy to be aware of. Google is no friend of mine when it comes to this topic; it wasn’t helpful when we were…

May 1st, 2022 The bounciest baby is still as bouncy as ever! She never.stops.moving. Once she figures out this crawling motion, it’s over 😆😆😆 Although we’re not sure what’s gonna come…

Because we didn’t anticipate that something would go wrong and we didn’t know the situation we would be in until we were in it, we never had the opportunity before…

Remembering the Small Wins In our 4th and final post on coping with a child’s diagnosis, I want to talk about the importance of focusing on the small wins and…

Finding Your Why When a woman becomes pregnant, she doesn’t think of the things that could go wrong, because that honestly seems so outrageous that *our* or *your* baby would…

Welcome to Holland A fellow Holland mom & friend I met in college shared this poem with me. Her son also has a very rare genetic condition and they are…

February 1st, 2022 Well here we are, 7 months in! I could probably say every month “Where is the time going?!” and it will always ring true. At 7 months,…

The 5 Stages of Grief No matter what a person is mourning, they typically cycle through the 5 stages of grief. For me, I have an internal struggle with saying…

Wow. Words cannot even begin to express the gratitude we feel from all of the love, prayers, well wishes, and support we have received since going “live” with our site.…