While Izzy was hospitalized, all medicine was given to her through her NG & NJ tubes, her IV, and her PICC line. Once the talk started about discharge, we had…
-
Tuesday, 7/20 After morning rounds, we waited for Izzy’s swallow study around 1 pm. She passed it with flying colors. This test was done in x-ray with me feeding her…
-
Monday, 7/19 EEG is on. Neurologist came by and told us all good from his end – keep on the Phenobarb because it’s working and she’s not seizing! EEG is…
-
Sunday, 7/18 When Izzy got her initial nasal tube placed, I asked if there was any way she could pull it out. They said no. So, Izzy pulled out her…
-
Saturday, 7/17 At 1:45 in the morning, Izzy aspirated. This was the worst day of my life. We’re on the neuro floor. Izzy gets laid down in her crib to…
-
Thursday, 7/15 Got to hold Izzy one time throughout the night & rock her back to sleep. Had to stand to do this though because I couldn’t move her away…
-
Wednesday, 7/14 The frustration begins. At 1:40 in the morning, I texted my mom, “The medicine isn’t working. She’s still seizing, and no one seems to know what the fuck…
-
Tuesday, 7/13 Our pediatrician referred us to Akron Children’s neurology floor due to Izzy’s seizures. We arrived to the hospital & went directly to admitting. We had packed a few…