One year ago today, Izzy was hospitalized for what we would learn to be her 22q11.2 diagnosis. While that time was scary and full of the unknown, Sterling and I…
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$196,713.96 That was the total of our bill for Izzy’s inpatient stay in July (though it wasn’t mailed to us until January). That does not include any of her ongoing…
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During our inpatient stay, we learned just how important it is to have good healthcare workers. While Izzy was hospitalized at Akron Children’s, we worked with countless individuals – doctors,…
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Thursday, 7/29 We just met with immunology since everything originally started with a low T cell count and possibility of an autoimmune disease (TREC). The immunologist gave us all of…
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Sunday, 7/25 Results came back good on the CT scan – no sling thank God. Finally someone gave us some clarification on Izzy’s heart “abnormalities”. Apparently hers is built differently…
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Tuesday, 7/20 After morning rounds, we waited for Izzy’s swallow study around 1 pm. She passed it with flying colors. This test was done in x-ray with me feeding her…