Because we didn’t anticipate that something would go wrong and we didn’t know the situation we would be in until we were in it, we never had the opportunity before…
-
During our inpatient stay, we learned just how important it is to have good healthcare workers. While Izzy was hospitalized at Akron Children’s, we worked with countless individuals – doctors,…
-
January 1st, 2022 Half a year. Time. Is. Flying. 🤯 2021 was quite the year for us, and our biggest blessing to come from it is this babe right here. She’s…
-
Wednesday, 7/28 Met with speech today and that went well. Just finished another bottle so currently trying to hold that down. And finally someone actually spoke to a cardiologist. Not…
-
Sunday, 7/25 Results came back good on the CT scan – no sling thank God. Finally someone gave us some clarification on Izzy’s heart “abnormalities”. Apparently hers is built differently…
-
Saturday, 7/24 Last night was really hard. After getting the positive DiGeorge results, I couldn’t relax my mind. “no cure” … Stop googling. “likely to be diagnosed with Autism” ……
-
Friday, 7/16 Sterling is over it. He wants to transfer to Cleveland Clinic if this hospital does not hear us out today. Because they messed up the second spinal yesterday…
-
It’s just so frustrating. Sterling and I wouldn’t trade Izzy for the world. But we could have prepared if we had known. We could have had her treated from birth…