April 1st, 2022 Poor girl has been very sick the past few days with symptoms that cause us a lot of worry because of her immune deficiency and her blood…
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While Izzy was hospitalized, all medicine was given to her through her NG & NJ tubes, her IV, and her PICC line. Once the talk started about discharge, we had…
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From the start, feedings with Izzy have been challenging. However, in more recent times, they have also been rewarding seeing her progress. We know with her diagnosis that she will…
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March 1st, 2022 So much happiness in this little 8 month peanut of ours 💕 Although petite, she LoVeS to eat! As we continue to taste and try new foods &…
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February 1st, 2022 Well here we are, 7 months in! I could probably say every month “Where is the time going?!” and it will always ring true. At 7 months,…
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December 1st, 2021 Where is the time going?! Our petite little babe has almost doubled her birth weight & grew 2.5 inches since last month! She may be small, but…
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Tuesday, 7/27 Today, Izzy will have an ultrasound of her kidneys to make sure they are anatomically correct since kidney problems are a possible symptom with DiGeorge/22q. We’re also checking…
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Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…
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Sunday, 7/25 Results came back good on the CT scan – no sling thank God. Finally someone gave us some clarification on Izzy’s heart “abnormalities”. Apparently hers is built differently…
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Saturday, 7/24 Last night was really hard. After getting the positive DiGeorge results, I couldn’t relax my mind. “no cure” … Stop googling. “likely to be diagnosed with Autism” ……