Tuesday, 7/27 Today, Izzy will have an ultrasound of her kidneys to make sure they are anatomically correct since kidney problems are a possible symptom with DiGeorge/22q. We’re also checking…
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Monday, 7/19 EEG is on. Neurologist came by and told us all good from his end – keep on the Phenobarb because it’s working and she’s not seizing! EEG is…
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Sunday, 7/18 When Izzy got her initial nasal tube placed, I asked if there was any way she could pull it out. They said no. So, Izzy pulled out her…
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Saturday, 7/17 At 1:45 in the morning, Izzy aspirated. This was the worst day of my life. We’re on the neuro floor. Izzy gets laid down in her crib to…
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Friday, 7/16 Sterling is over it. He wants to transfer to Cleveland Clinic if this hospital does not hear us out today. Because they messed up the second spinal yesterday…