Friday, 7/23 Reflux is a bitch. I can tell it’s really bothering Izzy. She’s fussy and making gasping and choking noises which are pretty alarming. She’s trying to figure out…
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Monday, 7/19 EEG is on. Neurologist came by and told us all good from his end – keep on the Phenobarb because it’s working and she’s not seizing! EEG is…
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Sunday, 7/18 When Izzy got her initial nasal tube placed, I asked if there was any way she could pull it out. They said no. So, Izzy pulled out her…