Because we didn’t anticipate that something would go wrong and we didn’t know the situation we would be in until we were in it, we never had the opportunity before…
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$196,713.96 That was the total of our bill for Izzy’s inpatient stay in July (though it wasn’t mailed to us until January). That does not include any of her ongoing…
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From the start, feedings with Izzy have been challenging. However, in more recent times, they have also been rewarding seeing her progress. We know with her diagnosis that she will…
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The 5 Stages of Grief No matter what a person is mourning, they typically cycle through the 5 stages of grief. For me, I have an internal struggle with saying…
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Wow. Words cannot even begin to express the gratitude we feel from all of the love, prayers, well wishes, and support we have received since going “live” with our site.…
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During our inpatient stay, we learned just how important it is to have good healthcare workers. While Izzy was hospitalized at Akron Children’s, we worked with countless individuals – doctors,…
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Friday, 7/30 18 days in & we’re FINALLY going home!!! They said “if” she is ready, then today’s the day. I said, she IS ready. No if’s. Sterling and I…
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Thursday, 7/29 We just met with immunology since everything originally started with a low T cell count and possibility of an autoimmune disease (TREC). The immunologist gave us all of…
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Wednesday, 7/28 Met with speech today and that went well. Just finished another bottle so currently trying to hold that down. And finally someone actually spoke to a cardiologist. Not…
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Monday, 7/26 14 days in here & maybe we’re getting somewhere? Neuro is taking Izzy down from 2 daily doses of Phenobarb to 1. This change will last for 1…