Because we didn’t anticipate that something would go wrong and we didn’t know the situation we would be in until we were in it, we never had the opportunity before…
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$196,713.96 That was the total of our bill for Izzy’s inpatient stay in July (though it wasn’t mailed to us until January). That does not include any of her ongoing…
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Below I have outlined the Supplemental Security Income process (SSI) through the Social Security Administration (SSA). SSI is a needs-based program that provides monthly payments to children and adults with…
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Throughout Izzy’s outpatient appointments, a few of her specialists would always ask, “Are you working with Help Me Grow?” We would respond no, but that we would look into it……
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Remembering the Small Wins In our 4th and final post on coping with a child’s diagnosis, I want to talk about the importance of focusing on the small wins and…
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Finding Your Why When a woman becomes pregnant, she doesn’t think of the things that could go wrong, because that honestly seems so outrageous that *our* or *your* baby would…
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Welcome to Holland A fellow Holland mom & friend I met in college shared this poem with me. Her son also has a very rare genetic condition and they are…
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The 5 Stages of Grief No matter what a person is mourning, they typically cycle through the 5 stages of grief. For me, I have an internal struggle with saying…
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Friday, 7/16 Sterling is over it. He wants to transfer to Cleveland Clinic if this hospital does not hear us out today. Because they messed up the second spinal yesterday…