One year ago today, Izzy was hospitalized for what we would learn to be her 22q11.2 diagnosis. While that time was scary and full of the unknown, Sterling and I…
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With the 22q11.2 diagnosis, there is life expectancy to be aware of. Google is no friend of mine when it comes to this topic; it wasn’t helpful when we were…
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May 1st, 2022 The bounciest baby is still as bouncy as ever! She never.stops.moving. Once she figures out this crawling motion, it’s over 😆😆😆 Although we’re not sure what’s gonna come…
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Because we didn’t anticipate that something would go wrong and we didn’t know the situation we would be in until we were in it, we never had the opportunity before…
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Remembering the Small Wins In our 4th and final post on coping with a child’s diagnosis, I want to talk about the importance of focusing on the small wins and…
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Finding Your Why When a woman becomes pregnant, she doesn’t think of the things that could go wrong, because that honestly seems so outrageous that *our* or *your* baby would…
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Welcome to Holland A fellow Holland mom & friend I met in college shared this poem with me. Her son also has a very rare genetic condition and they are…
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The 5 Stages of Grief No matter what a person is mourning, they typically cycle through the 5 stages of grief. For me, I have an internal struggle with saying…
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Wow. Words cannot even begin to express the gratitude we feel from all of the love, prayers, well wishes, and support we have received since going “live” with our site.…