Home 22q11.2 July 28th, 2021

July 28th, 2021

by Summerly Rowlands

Wednesday, 7/28

Met with speech today and that went well. Just finished another bottle so currently trying to hold that down.

And finally someone actually spoke to a cardiologist. Not us… but the senior resident and the hospitalist.

From Izzy’s CT a few days ago when they were checking for a sling over her esophagus and ultimately just told us that there wasn’t one, the actual results read this: “There is an aberrant right subclavian artery which is seen extending cranially and to the right arising from the descending aorta.”

Clear as mud, right?…

Well, from what the cardiologist and radiologist said (they both apparently looked over Izzy’s scan), Izzy’s artery concern is very small and thin, it’s not interfering with her esophagus or her trachea, and they do not see a need to follow up. They said it is a “normal variant of her anatomy”, which does make sense with the information we were given about her heart being built differently but functioning just the same.

The cardiologist even went as far to say that he has never heard of a case where someone has what Izzy does and it’s become an issue later on.





Yessssss, the most amazing news!!!

Izzy is getting her PICC out! 😊

Her kidneys are normal! 😊

Today should be her final dose of tube meds – starting them all orally! 😊

And finally a plan to get out of here!!! 😊😊😊

They will discharge us Friday
if all goes well today & tomorrow.

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