18 days in & we’re FINALLY going home!!!
They said “if” she is ready, then today’s the day.
I said, she IS ready. No if’s.
Sterling and I looked at each other in disbelief at first. Is this really happening? Are they really letting us out?!
Then we packed as fast as we could so they couldn’t change their minds 😅
We met with a few specialists, we got our discharge papers, we hit the pharmacy for our home meds (Phenobarbital 1x a day, Calcium Carbonate 3x a day, Calcitriol 2x a day, Lactulose 1x a day, Pepcid 1x a day, & fungal cream as needed), & we said our goodbyes.
4:08 pm – We’re out!!!!
“Sterling and I just want to say thank you everyone for your continued prayers and good thoughts always coming Izzy’s way. It is our deepest prayer and hope that everything with Izzy will be mild and possibly even outgrown. We never want Izzy to feel different or be treated different, we want her to be able to do everything that a typical child can do. And that is 100% possible. She may have DiGeorge, but that label does not define her. So with that, we ask that you love her up as much as you want but never feel bad for her, or at least never show her that you feel bad for her. And never feel bad for us. A few of the medical staff here have said this and they’re right – Izzy is Izzy, same girl who was born July 1st, still destined for the same things she always has been – nothing has changed except our awareness. So when we see you, we will hug and celebrate that we are home, but we won’t be sad, because there’s nothing sad about our girl. We are just ready to live our new normal life as a family of 5 💗 We love you all so much.”