One year ago today, Izzy was hospitalized for what we would learn to be her 22q11.2 diagnosis. While that time was scary and full of the unknown, Sterling and I…
Akron Children’s
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Sterling. Izzy’s dad. My rock. My best friend. What would I do without him? What would we do without him? When Izzy was hospitalized, he was the calm to my…
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Because we didn’t anticipate that something would go wrong and we didn’t know the situation we would be in until we were in it, we never had the opportunity before…
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$196,713.96 That was the total of our bill for Izzy’s inpatient stay in July (though it wasn’t mailed to us until January). That does not include any of her ongoing…
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While Izzy was hospitalized, all medicine was given to her through her NG & NJ tubes, her IV, and her PICC line. Once the talk started about discharge, we had…
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From the start, feedings with Izzy have been challenging. However, in more recent times, they have also been rewarding seeing her progress. We know with her diagnosis that she will…
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Below is our first guest post from my wonderful cousin, Samantha Metzger, who is finishing up graduate school to join the healthcare world as a Child Life Specialist. I asked…
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The 5 Stages of Grief No matter what a person is mourning, they typically cycle through the 5 stages of grief. For me, I have an internal struggle with saying…
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During our inpatient stay, we learned just how important it is to have good healthcare workers. While Izzy was hospitalized at Akron Children’s, we worked with countless individuals – doctors,…
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Friday, 7/30 18 days in & we’re FINALLY going home!!! They said “if” she is ready, then today’s the day. I said, she IS ready. No if’s. Sterling and I…